Self Advocacy
Ariel’s World is the journey of a girl who just happens to have Down syndrome & where her namesake scented products raise money for Down Syndrome charities
Ariel’s World, Down syndrome, raise money, scented products, Down syndrome NSW, LifeStart NSW, Ariel Xmas Candle, Lip Balm, Ariel Candle, Ariel Candle “Mojito”, Ariel Candle “Secret Garden”, Ariel Diffuser “Secret Garden”
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Self Advocacy.

I recently completed a Parents as Case Coordinators course through Lifestart, the early intervention program we are with for Ariel. It was a 7 week course once a week for 2 hours. Lifestart is an early intervention program for all types of disabilities not just Down Syndrome. It was a really good course and I got to meet some really great people.

The course covered topics like goal setting, family services, self care, problem solving and self advocacy.  Self Advocacy is where I got the most from this course. I am a peace loving person and sensitive by nature. I lack(ed) skills in assertiveness. I actually didn’t think I would need to be “assertive” to have my child included in the basic things all other kids have rights to. Apparently in some cases I do. I have even spoken to a few mums sho have older kids with Down Syndrome and they have also told me you have to fight for them all the way. I have also read a few blogs where mums have had to fight for inclusion. Just the other day I read one where a mum wanted her 3 year old son who had down syndrome to join her daughters gymnastics class. She was treated so awful and it was so awkward that she stopped going after 3 sessions.  I am going to need a thicker skin I think.

When I first found out I was having a girl I instantly started to plan out her life. She would play music, be fit and maybe even do some modelling. I had all these dreams and goals …. maybe too many but I was excited. After my little girl was born and we were told she had Down Syndrome I initially thought something along the lines of ” well there goes all those dreams and goals” I felt a bit lost and was trying to think how life was going to be having a child with a disability.  Fast forward 7 and a half months I realise I can have all the same dreams and goals and she will have a go at all of those things and more. I will make sure of it!

Maybe even modelling… 🙂

ariel pineapple suit

Here is a short video that I think is worth watching. It really gives you an understanding of what Down Syndrome is and what it is not. Thank you for watching.



  • Tace
    Posted at 09:13h, 01 October Reply

    I have read all your blogs and am so in awe of you and your family. Ariel is a stunning little girl and she is so lucky to have you as her mummy!

    • Raylene Barton
      Posted at 02:21h, 02 October Reply

      Thank you so much Tace I appreciate that. I also feel lucky and grateful for her every day. 🙂

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