12 Sep Less of the Diagnosis and More of the Girl.
Lately I have been seeing more and more of Ariel and less of the Down Syndrome. Thank you! The end…
No just kidding, I understand there will be ebb and flow along our journey.
When you have a baby and you were not expecting her to have Down Syndrome it can be pretty tough at times. My partner and I put on a brave face right away and embraced it. The pediatrician remarked on how great we were and that not many people reacted in such a way. It was still hard though and it still is at times. The month of August I cried a lot. I read a blog written by a mum of a little girl with DS and in this particular post she was saying how she would watch her daughter at school in the play ground. All the other “typical kids” would all dote on her but then they would go off to be with their “real friends” and she would be by herself. Her daughter would sometimes say that no one wanted to be her friend because she was different. This broke my heart and a cried about it off and on for quite a few days…. actually a few weeks.
The biggest concern for me, after Ariel’s health, is discrimination. It is sad to think that most people wont see the girl because of the diagnosis. I hope to be the one to change that for her. Anyway it is September now and spring is here. I have been feeling happier. The Ariel candles are being launched this month and we are healthy!
I realised a few days ago that I hardly see the Down Syndrome when I am with Ariel. initially it was all I saw and all I thought about. It is not that I resented it (the DS), it was just always there in my mind. At the beginning I had this strange urge to “declare” it to strangers in the shopping centre if they stopped to admire my sleeping baby. I didn’t of course – that would have been awkward! I hated that I was so focused on it but I couldn’t help it. So to be at this place where I can see Ariel more and forget about the DS more is like a relief of some sort. She is beautiful! 🙂