03 Oct Down Syndrome Awareness Month 2015.
Estimated Reading time 4 mins
I just read the last post I wrote entitled Down Syndrome Awareness Month. It was written a year ago. Wow, a LOT has changed since then.
The biggest thing I have learnt about Down Syndrome in the last year is that Life Goes On!
Yep, as the old saying goes Life Goes On. I don’t always see Down Syndrome in Ariel. Most of the time I don’t think about it when I am dealing with her and every day things. Sometimes I see it load and clear and I am taken aback for a minute and reminded that she has a disability. I pause to reflect and sometimes I feel sad, sometimes I feel extremely proud of her (cause she is just so cool) and sometimes I get anxiety.
Then I think about our reality.
Ariel goes to daycare 3 times a week. She is the only kid there with Down Syndrome. Ariel is loved by her carers and the other kids. We are treated with respect and kindness by everyone. We are accepted and included. Ariel loves it there.
We live in an apartment block. We have a neighbour with a six month old son. We have play dates and do the bay walk once a week. All of the neighbours treat us with kindness and respect and offer their help if I need it.
Even though I am separated Ariel has her father in her life. She loves going to say with him 1-2 nights per week. He is very proud of her and loving toward her. His Family also love and care for her. She is well provided for and taken care of.
Ariel is only 20 months old so I am not an expert on every thing Down Syndrome. I can only speak from my experience so far. Ariel is a bright, happy and healthy toddler. Being a typical kid she likes to have a good whinge and she has started to try and push boundaries. She has great comprehension and very inquisitive. She is obviously behind other kids her age but I have already come to terms with that, as she has Down Syndrome. I can truly say that it does not bother me.
I guess the sadness and anxiety I sometimes feel can only come from fear. Fear of the unknown. Fear of rejection which I have written about before. You can read the post here. So, I am going to continue to get get out there and enjoy my life. I will continue to share with you, all the “normal” things we do in hope that it will bring awareness to the fact that life goes on with Down Syndrome and there is nothing to fear.
This month, (October, Down Syndrome Awareness Month 2015) I am giving away a free small size Ariel candle with every purchase of the Ariel candle. $5 from every candle sold goes to Down Syndrome NSW and Lifestart NSW. If you live in Sydney I am also happy to deliver it for free. They make gorgeous Xmas gifts. 🙂